Step by step for SMA

Step by step for SMA

We are going to run around Ontario virtually to raise awareness and research funds for Spinal Muscular Atrophy.

Started 19 Jan 2018, by Innspired Steps


Group Mission

Mission details

From: McMaster Children's Hospital
To: Kitchener, ON
How:


MISSION FEATURE

MISSION DISTANCE

DISTANCE GOAL
3,000.0 KM
3,161.2 KMSUCCESS!

FUNDRAISING TARGET

FUNDRAISING GOAL
$3,000 CAD
$1,190$1,810

MISSION TIME

TIMEFRAME
128 Days
332 DaysFINISHED!


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Spinal Muscular Atrophy (SMA) is a motor neuron disease. The motor neurons affect the voluntary muscles that are used for activities such as crawling, walking, head and neck control, and swallowing.

It is a relatively common “rare disorder”: approximately 1 in 6000 babies born are affected, and about 1 in 40 people are genetic carriers.

SMA affects muscles throughout the body, although the proximal muscles (those closest to the trunk of one’s body – i.e. shoulders, hips, and back) are often most severely affected. Weakness in the legs is generally greater than in the arms. Sometimes feeding and swallowing can be affected. Involvement of respiratory muscles (muscles involved in breathing and coughing) can lead to an increased tendency for pneumonia and other lung problems.

Sensation and the ability to feel are not affected. Intellectual activity is normal and it is often observed that patients with SMA are unusually bright and sociable.

Patients are generally grouped into one of four categories, based on certain key motor function milestones (Types 1, 2, 3 & 4) Type 1 is the most severe form of the disease, type 4 the least severe.

We are raising money and awareness for SMA by supporting CureSMA.ca. This organization provides crucial research funding and much needed support for families dealing with SMA.



SPONSOR THIS MISSION

$1,190 raised since 19 Jan 2018.

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5 Jun 2018

Kelly Ann

Earned an award
 0    
5 Jun 2018

Gillian Maramieri

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 0    
5 Jun 2018

Helen Henderson

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5 Jun 2018

Denise Zammit

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5 Jun 2018

Chris Donnelly

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5 Jun 2018

April Simonson

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5 Jun 2018

Matthew Gastmeier

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5 Jun 2018

Jennifer Hipel

Earned an award
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5 Jun 2018

Andrew Busing

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5 Jun 2018

Allison Tait

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5 Jun 2018

Rachel Barth

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 0    
5 Jun 2018

Kaylee Taylor

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5 Jun 2018

Jennifer Grobbink Taylor

Earned an award
 0    
5 Jun 2018

Kristin Donnelly

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5 Jun 2018

Warren Hodgson

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5 Jun 2018

Rachel Kooyman

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 0    
5 Jun 2018

Rachel Kooyman

closed this mission
 0    
3 Jun 2018

Rachel Kooyman

7.4 km
Daily summary from Fitbit
 0    
3 Jun 2018

Kristin Donnelly

12.3 km
Daily summary from Fitbit
 0    
2 Jun 2018

Rachel Kooyman

4.5 km
Daily summary from Fitbit
 0    



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